At the insistency of Ella's pediatrician, we visited a neurologist last Thursday to talk about what could or could not be going on in Ella's brain right now. After meeting what you would think is a typical neurologist (robotic, non-personable, completely non-McDreamy), we all came to the conclusion that Ella needs to have an MRI done to determine if there is anything to worry about.
The doctor thinks that there is a very low probability that there are any hemangiomas, masses, or signs of Sturge-Weber Syndrome (a syndrome that can be signaled by large markings across half the forehead and top of eyelid...exactly what Ella has). He is optimistic of the low probability because Ella seems to be doing fine with all milestones, with the minor exception of not walking yet. He wasn't even that too concerned over that, especially after we told him what she could do.
If the MRI determines that there is something there, it will most likely just be for documentation purposes, because if it is Sturge-Weber, there is nothing you can do about that but treat the symptoms (glaucoma, seizures, developmental delays). You can also have a very mild case of that, which we really don't think any of that is happening, because it should have surfaced by now. If she has hemangiomas growing in her brain, they, like the ones on her face, should go away with time...plus the medication that she was on for a year would have probably shrunk those as well.
In order to have the MRI, Ella must be sedated since you have to be very still for 30 minutes to an hour. We are not very pleased with that, but the doctor said they do these all the time and there is little risk. So, keep us in your prayers on November 30th. We will head to LeBonheur in Memphis at 8:45 that morning.
Since Ella will not be allowed to eat or drink 8 hours before that, we will also need your prayers for handling our hungry baby...ha! She can get feisty when she doesn't eat...I can't blame her though. I do too!!
We will find out the results of the MRI on December 9th when we meet with the neurologist again. Thanks for your thoughts!
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5 comments:
Praying for Ella and you guys as well. Hopefully, they will get Ella in early enough that she will do well with the not eating part. Praying that all tests come back clear!
I'm praying for you guys too! I think everything will be fine and it will be good for you and Lee to know that instead of wondering. An "I told you so" may even be in order for a pediatrician! Looking forward to tomorrow... Go Tigers! (or not, it'll be a fun tailgate regardless!)
Praying for Ella and family! God is going to protect that sweet, precious girl...I just know it!
Thinking of you!
We're keeping y'all in our prayers. Especially regarding the no food for 8 hours part, yikes! I bet she will do great.
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